You are responsible for the maintenance and development of our key programme European Standards of Care for Newborn Health (ESCNH). This includes scientific monitoring of the implementation and regular lifecycle processes, responsibility for the development of a self-assessment tool and the organisation of (digital) workshops and Delphi panels with various stakeholders (primarily medical experts and patient representatives) You assist the Executive Board in the strategic development of the ESCNH department Representation of the patient's / parent's voice in an international and EU-funded research project. This includes an engagement with international stakeholders and/or development and dissemination of patient information documents (including tasks in the field of communication and dissemination) Depending on your own expertise and the actual need, you may be appointed with other responsible tasks in other areas of the foundation's scientific work: e.g. conception and drafting of scientific publications, manuals or position papers for medical professionals You participate and represent the foundation at international/national events and congresses and practical presentations